My endometriosis story with the lupron shot
- Nikki Brinley

- Nov 8, 2020
- 3 min read
I remember standing in line at the post office and I got dizzy, I went outside and fainted and woke up to the sun beaming in my face and the hot cement. I felt a sharp pain and I felt like I was going to die. Stupid of me I got in my car and drove home, I walked in and I fell and screamed in pain. It was pain I've never felt before and never wanted to feel again.
I was rushed to the ER and the doctors told me I had a cyst burst on my ovaries.
I expected less. I started to notice more pain though through out my life time. My adopted mother could not figure it out either she just thought it was cysts including my doctors or a UTI. The amount of time I spent in the bathroom over the years has been ridiculous.
The best way to describe to you the pain..
- feeling the need to pee
- trying to pee but nothing comes out and its burning
- you have, burning, stabbing pain, a knife that feels like its jabbing you all in one in your pelvic area.
As your mensural cycle hits it gets worse with the pain.
I remember going to the doctors twice a week for my pain and them just giving me anti biotics even though I didn't have a uti because they couldn't figure it out.
I have been through ultra sounds, cat scans, mri, bladder testing, vagina testing, blood work everything you name.. after the 10th doctor the last one told me I had endo.
It explained everything. But unfortunately it was not the news I needed to hear because there is no cure for endo not even surgery.
They put me on birth control, didn't work, tried the Lupron shot made it 10x worse. My current doctor refused surgery and did not help me what so ever and I felt like I wasted my time. A lot of doctors have faced their back on me because there's not much they can do and im young so they do surgery my risks of dying or other complications are more risky.
If a doctor tells you to get the Lupron shot please say no..
It was the worse decision i have ever made and I'm surprised the doctor injected it in me knowing the dangerous side effects it has as well as permeant effects.
My side effects:
- cancelled out my medications for depression
- made me have suicide thoughts
- hot and cold flashes
- wetting my pants
- the pain was worse
- joint pain
- limited to active activities
- sleep was wayyy off
- nightmares
- loss of appetite
- reduced sexual intrest
- vaginal dryness
- sweating
- altered mental status
- loss of hair
- memory loss
SO DONT GET IT PLEASE.
Everyone's bodies are different though so maybe it could help you but for me it just made me worse.
Due to endo my job opportunities are limited, i cant go out a lot due to needing the toilet, it made me lose income and time. But it didn't stop me. I used every last breath I had and got up and fought my own body. And let me tell you that is the strongest thing anyone can do. I got up, started to change my mindset, started to practice self healing and being thankful for my broken body. Endo doesn't define me, me fighting it is what defines me.
A lot of people don't understand the pain or know how it feels to have random flare ups. Trust me Id rather be out making money or making memories than sitting on my phone on my toilet for hours hoping the burning stops. I will keep fighting my disease until my last breath and I hope so do you. You are strong. You are not alone. Do not let doctors control your body. You are amazing and I'm here to cheer you on babe

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